| First Name | Last Name | Organization | City | Country | Speciality |
| Xuefeng | Zhao | State Key Laboratory of Oral Diseases USA , National Clinical Research Center for Oral Diseases,West China Hospital of Stomatology, Sichuan University, China | Sichuan | China |
Orthodontist * Researcher |
| Roland | Chapurlat | CHU Lyon/INSERM | Lyon Rhone Alpes Region | France |
Rheumatologist * Clinical Scientist |
| Thomas | Funck Bentano |
Université Paris Cité / APHP / INSERM Hôpital Lariboisière |
Paris | France |
Rheumatologist * Clinical Scientist |
| Arnaud | Vanjak |
Université Paris Cité / APHP / INSERM Hôpital Lariboisière |
Paris | France |
Rheumatologist * Clinical Scientist |
| Lothar | Seefried |
University of Wuerzburg |
Wuerzburg | Germany |
Orthopedic Surgery / Osteology* |
| Alessandro | Corsi | Roma University | Rome | Italy |
Pathologist, Researcher |
| Mara | Riminucci | Sapienza University, Anatomic pathology, | Rome | Italy |
Pathologist, Researcher |
| Luisa | de Sanctis | University | Torino, Piemonte | Italy | Pediatric Endocrinologist* |
| Natasha | Appelman-Dijkstra | Leiden University Medical Center | Leiden | The Netherlands |
Endocrinologist * Clinical Scientist |
| Nathalie | Bravenboer | Amsterdam UMC | Amsterdam | The Netherlands | Basic scientist |
| Oana | Bulaicon | Leiden University Medical Center | Leiden | The Netherlands |
Endocrinologist ** PhD Student |
| Martine | Dekker | Patientenvereniging Fibreuze Dysplasie | The Netherlands | Patient Society representative | |
| Elisabeth | Eekhoff | Amsterdam UMC | Amsterdam | The Netherlands |
Endocrinologist ** |
| Sophie | Huisman | Leiden University Medical Center | Leiden | The Netherlands | PhD Student |
| Dimitra | Micha | Amsterdam UMC | Amsterdam | The Netherlands | Basic scientist |
| Pieter Bas | de Witte | Leiden University Medical Center | Leiden | the Netherlands |
Orthopedic surgery, Clinical Scientist*, Epidemiologist |
| Diana | Ovejero | Organization Hospital del Mar Research Institute | Barcelona | Spain |
Endocrinologist, Clinical Scientist* |
| Alison | Boyce | National Institutes of Health | Bethesda | United States |
Pediatric Endocrinologist * Clinical Scientist |
| Michael T. | Collins | National Institute of Health special volunteer | Bethesda | United States |
Endocrinologist** Clinical Scientist |
| Camryn | Berry |
Boston Children’s Hopsital FD/MAS Alliance |
Boston | United States |
PhD Student Patient representative |
| Kaitlin | Maher | Nemours Children’s Hospital | Orlando | United States |
Physician Assistent Orthopedics * |
| Jason | Malone | Nemours Children’s Hospital | Orlando | United States |
(Pediatric) Orthopedic Surgery * |
| Robert P. | Stanton | Nemours Children's Hospital | Orlando | United States |
(Pediatric) Orthopedic Surgery * |
| Sophie | Collier | FDSSUK | United Kingdom | Patient Society representative | |
| Heather | Delaney | FDSSUK | United Kingdom | Patient Society representative |
* Active clinical service, ** No active clinical service