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Videopresentations of the 2023 Consortium meeting

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The videopresentations of the Consortium meeting in Silver Spring September 2023 are online!

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25 years of FD/MAS research at the National Institutes of Health

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On the 11th of September there was a special symposium celebrating 25 years of FD/MAS research at the National Institutes of Health. 

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Summary of the 2023 meeting

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On the 10th of September the consortium held its first inaugural live meeting in Silver Sprong MD, the United States. The meeting was preceded by the Patient meeting of the FD/MAS alliance and allowed scientists, medical doctors and patients (advocates/caregivers) to interact for 3 days on the field of FD/MAS.

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Program 2023 meeting of the ICFD/MAS

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Sunday the 10th of September the International Consortium for Fibrous Dysplasia and McCune Albright syndrome will have its first 'live' meeting after its official founding in february 2022. We will come together to discuss science but also clinical care in FD/MAS.  

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Let's meet again!

Sunday the 10th of September we will have the opportunity to have a live meeting in Silver Spring, MD (USA)!

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Launch symposium

On the 14th of July the ICFDMAS launch symposium will take place online. 

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Watch the full FaceBook interview with Adrienne Mc Bride and dr Natasha Appelman-Dijkstra

FDMAS Global Awareness week was kicked off with an interview live on FaceBook. 

 

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Global collaboration launches the International Consortium for Fibrous Dysplasia and McCune- Albright Syndrome

Launch of the International Consortium for Fibrous Dysplasia and McCune-Albright syndrome Ltd. (ICFDMAS).

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