New Patient board director!
Tuesday 11 November 2025
Successful Consortium meeting in Madrid
Saturday 25 October 2025
A successful meeting in Madrid: ICFDMAS 2025 Consortium Meeting wrapped up
Registration for the 2025 Consortium meeting open!
Monday 9 June 2025
Come and join us in beautiful Madrid 24-10-2025 till 26-10-2025.
Abstract center open!
Tuesday 27 May 2025
We’re excited to announce that the next International Conference on Fibrous Dysplasia and McCune-Albright Syndrome held in Madrid October 24, 25, and 26, 2025 is approaching — and abstracts are now being accepted!
Save the date for the 2025 Consortium meeting
Tuesday 12 November 2024
The International Consortium for Fibrous Dysplasia and McCune-Albright Syndrome will host its next biennial symposium in Madrid in 2025.
Videopresentations of the 2023 Consortium meeting
Sunday 28 January 2024
The videopresentations of the Consortium meeting in Silver Spring September 2023 are online!
25 years of FD/MAS research at the National Institutes of Health
Monday 11 September 2023
On the 11th of September there was a special symposium celebrating 25 years of FD/MAS research at the National Institutes of Health.
Summary of the 2023 meeting
Sunday 10 September 2023
On the 10th of September the consortium held its first inaugural live meeting in Silver Sprong MD, the United States. The meeting was preceded by the Patient meeting of the FD/MAS alliance and allowed scientists, medical doctors and patients (advocates/caregivers) to interact for 3 days on the field of FD/MAS.
Let's meet again!
Wednesday 29 March 2023
Sunday the 10th of September we will have the opportunity to have a live meeting in Silver Spring, MD (USA)!
Watch the full FaceBook interview with Adrienne Mc Bride and dr Natasha Appelman-Dijkstra
Saturday 26 February 2022
Global collaboration launches the International Consortium for Fibrous Dysplasia and McCune- Albright Syndrome
Wednesday 16 February 2022
Launch of the International Consortium for Fibrous Dysplasia and McCune-Albright syndrome Ltd. (ICFDMAS).