Who are we?

The idea of the International Consortium for Fibrous Dysplasia and the McCune Albright Syndrome (ICFDMAS) emerged at a multidisciplinary workshop attended by FD/MAS patients, doctors and clinical researchers in Oxford, England 2015. A consensus was reached to create an international, multi-stakeholder partnership to advance research and clinical care in FD/MAS. The consortium has been meeting every 1-2 years since with meetings in Lyon (2016), Leiden (2017) and Florence (2019). The planned meeting in 2021 in Bethesda was cancelled unfortunately due to the COVID19 pandemic. Are you interested in our next meeting? Please contact us and we will sign you up for our mailing list.

Meeting Leiden